Now that treatment is over I feel the waiting is just terrible…its awful…watching the hubs in his worst pain the week after his last treatment was unbearable…and dealing with this feeding tube plain-ole SUCKS…there I said it…I know the damn thing is there to help him stay nourished by boy oh boy…I do not like it one bit… changing his feeding bags,  crushing all his meds to administer them through the tube…all of this is so time consuming.  And I am on my own now…while he was in treatment he was surrounded by the world’s greatest army ~ Cleveland Clinic who worked tirelessly keeping him afloat…with the main goal…cure…